Here i provide links to products for sensitive skin and children with special needs, having a child with special needs can be stressful at times, especially when trying to find the right product for our children skin. Here I give my recommended products I have personaly tested and products that have had great reviews.

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Uniquely Human  

Sunscreen for sensitive skin

Aveeno Kids Sunscreen

This effective mineral sunscreen lotion is formulated with friendly ingredients for sensitive skin and applies to kids' skin easily to lock in moisture without stinging. It's suitable for use on both the face and body,

From the pediatrician-recommended brand, this kids hypoallergenic sunscreen lotion for sensitive skin features a tear-free formula that is non-greasy, paraben-free, phthalate-free and fragrance-free

TruKid Sunscreen

This non toxic sunscreen for kids and babies is made in the USA and rated highest by the EWG. Crafted with clean ingredients and free from parabens, BPA, and chemical UV blockers. Dermatologist tested for safe daily use, ideal for baby summer essentials and toddler travel essentials.

Fun time activies for special needs children

Welcome to Ava's Blog.

Ava was born with a rare genetic disorder, Xeroderma pigmentosum (XP).

A condition that prevents her skin healing from sun damage. 

In this blog I share my stories of my daughter and I, and what

it's like living with XP

 

 

                                                                       

Unlike most children, Ava can't spend time in the sun, while she has her days outside, it is still very limited, even with sunscreen. She mainly goes out when going to hospital or when we can afford it, she goes to a shopping mall or indoor kids area where she can interact with other children.  Xeroderma pigmentosum (XP) is a very rare genetic disorder and there is currently no cure, she also has microcephaly (small head size) she has dwarfism and a learning disability. Every day life can be challenging, but we stay motivated and find ways to progress. I just want to share our life stories, so more people are made aware of rare genetic skin disorders and to let you know your not alone.

 

Ava can't be defined by her skin or mental disorder, her personality and heart is more special than words can describe, making her 1 in a million... And i wouldn't want to change her in any way. Even tho Ava has mental delays and is non-verbal Ava is very smart, when she is around other children she always tries to act like a parent and sometimes even shows children how to do things in a safer way.

 

It's also so hard finding the right moisturizing lotions and sunscreens for childrens delicate skins, even the right hair products can be a daunting task to find, especially for curly hair, so many expensive products i have tried but just never seem to work. I will also share any recommendations for what I or others have found useful that actually work. 

 

As parents, many of us never anticipate that our child may have special needs. For me, that was definitely the case. I never imagined I would find myself in such a situation, and honestly, I think that’s a natural reaction. What truly matters is how we choose to handle and embrace these circumstances once they arise.

Around eight months of age, I noticed that my daughter wasn't crawling or babbling like other babies. At first, I brushed it off, telling myself that every child develops at their own pace and that delays are normal. I was in denial, trying to reassure myself that everything was fine.

 

There were nights when I would cry, overwhelmed by a mix of emotions—confusion, fear, sadness, and hope. It wasn’t just because my daughter had special needs; it was also a journey of processing my feelings and coming to terms with the reality. It takes time to accept such a profound shift, and during that period, I had to learn to be patient with myself as well as with her.

As I began to seek answers and understanding, I realized the importance of being supportive, proactive, and resilient. Supporting my daughter through her unique journey has been a transformative learning experience. It’s taught me about unconditional love, strength, and the power of advocacy

 

This was my first experience with a child who has special needs, and it challenged me to grow as a parent. I became more attentive, more informed, and more compassionate. My perspective on the future has changed—you realize that the vision you once had may need to be adjusted, but that doesn’t mean it’s any less beautiful. Instead, it’s a different kind of future filled with love, hope, and new possibilities.

I am committed to learning and supporting my daughter in every way I can, and I share my story in the hope of inspiring and empowering other parents facing similar challenges. Remember, you are not alone, and even in difficult moments, love and resilience can help us create a future full of hope and promise.

 

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