Here i provide links to products for sensitive skin and children with special needs, having a child with special needs can be stressful at times, especially when trying to find the right product for our children skin. Here I give my recommended products I have personaly tested and products that have had great reviews.

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Uniquely Human  

Sunscreen for sensitive skin

Aveeno Kids Sunscreen

This effective mineral sunscreen lotion is formulated with friendly ingredients for sensitive skin and applies to kids' skin easily to lock in moisture without stinging. It's suitable for use on both the face and body,

From the pediatrician-recommended brand, this kids hypoallergenic sunscreen lotion for sensitive skin features a tear-free formula that is non-greasy, paraben-free, phthalate-free and fragrance-free

TruKid Sunscreen

This non toxic sunscreen for kids and babies is made in the USA and rated highest by the EWG. Crafted with clean ingredients and free from parabens, BPA, and chemical UV blockers. Dermatologist tested for safe daily use, ideal for baby summer essentials and toddler travel essentials.

Fun time activies for special needs children

Welcome to Ava's Blog.

Ava was born with a rare genetic disorder, Xeroderma pigmentosum (XP).

A condition that prevents her skin healing from sun damage. 

In this blog I share my stories of my daughter and I, and what

it's like living with XP

 

 

                                                                       

Unlike most children, Ava can't spend time in the sun, while she has her days outside, it is still very limited, even with sunscreen. She mainly goes out when going to hospital or when we can afford it, she goes to a shopping mall or indoor kids area where she can interact with other children.  Xeroderma pigmentosum (XP) is a very rare genetic disorder and there is currently no cure, she also has microcephaly (small head size) she has dwarfism and a learning disability. Every day life can be challenging, but we stay motivated and find ways to progress. I just want to share our life stories, so more people are made aware of rare genetic skin disorders and to let you know your not alone.

 

Ava can't be defined by her skin or mental disorder, her personality and heart is more special than words can describe, making her 1 in a million... And i wouldn't want to change her in any way. Even tho Ava has mental delays and is non-verbal Ava is very smart, when she is around other children she always tries to act like a parent and sometimes even shows children how to do things in a safer way.

 

It's also so hard finding the right moisturizing lotions and sunscreens for childrens delicate skins, even the right hair products can be a daunting task to find, especially for curly hair, so many expensive products i have tried but just never seem to work. I will also share any recommendations for what I or others have found useful that actually work. 

 

Ava is not permitted to be in the sun at all times; however, there are occasions when we have no choice, such as hospital appointments. During these outings, I ensure that I apply sunscreen all over her body. Additionally, Ava is required to wear long-sleeved shirts or dresses, gloves, and a cap to provide extra protection.

 

 

She is also not allowed to play outside, so approximately 99% of the time, she remains indoors. Our house is kept dark with the curtains always closed to minimize sunlight exposure.

 

 

Regarding sunscreen, we use a specific brand that works best for Ava—Eucerin. Her skin is very sensitive, and Eucerin is our top choice, as we consistently notice a significant improvement in her skin when using it. We also use Cetaphil as a secondary option, which we believe is the next best alternative.

 

As you know, sunscreen can be quite costly. We also receive sunscreen from the hospital, which we primarily use on her body. For her face, neck, and hands—areas that require more precise application—we use Eucerin because those come in smaller containers. We need to conserve this supply carefully to ensure she has enough until we are able to purchase more.

 

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