Here i provide links to products for sensitive skin and children with special needs, having a child with special needs can be stressful at times, especially when trying to find the right product for our children skin. Here I give my recommended products I have personaly tested and products that have had great reviews.

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Uniquely Human  

Sunscreen for sensitive skin

Aveeno Kids Sunscreen

This effective mineral sunscreen lotion is formulated with friendly ingredients for sensitive skin and applies to kids' skin easily to lock in moisture without stinging. It's suitable for use on both the face and body,

From the pediatrician-recommended brand, this kids hypoallergenic sunscreen lotion for sensitive skin features a tear-free formula that is non-greasy, paraben-free, phthalate-free and fragrance-free

TruKid Sunscreen

This non toxic sunscreen for kids and babies is made in the USA and rated highest by the EWG. Crafted with clean ingredients and free from parabens, BPA, and chemical UV blockers. Dermatologist tested for safe daily use, ideal for baby summer essentials and toddler travel essentials.

Fun time activies for special needs children

Welcome to Ava's Blog.

Ava was born with a rare genetic disorder, Xeroderma pigmentosum (XP).

A condition that prevents her skin healing from sun damage. 

In this blog I share my stories of my daughter and I, and what

it's like living with XP

 

 

                                                                       

Unlike most children, Ava can't spend time in the sun, while she has her days outside, it is still very limited, even with sunscreen. She mainly goes out when going to hospital or when we can afford it, she goes to a shopping mall or indoor kids area where she can interact with other children.  Xeroderma pigmentosum (XP) is a very rare genetic disorder and there is currently no cure, she also has microcephaly (small head size) she has dwarfism and a learning disability. Every day life can be challenging, but we stay motivated and find ways to progress. I just want to share our life stories, so more people are made aware of rare genetic skin disorders and to let you know your not alone.

 

Ava can't be defined by her skin or mental disorder, her personality and heart is more special than words can describe, making her 1 in a million... And i wouldn't want to change her in any way. Even tho Ava has mental delays and is non-verbal Ava is very smart, when she is around other children she always tries to act like a parent and sometimes even shows children how to do things in a safer way.

 

It's also so hard finding the right moisturizing lotions and sunscreens for childrens delicate skins, even the right hair products can be a daunting task to find, especially for curly hair, so many expensive products i have tried but just never seem to work. I will also share any recommendations for what I or others have found useful that actually work. 

 

 

Many people might wonder if Ava has opportunities for fun and play. Occasionally, we take her to places where she can enjoy herself and interact with other children. When she was a baby, we took her to the beach—however, that was before we became aware of her skin condition. Since then, that was the first and last time she visited the beach.

 

 

Ava has friends her age, and she often gets to play with other kids during visits or gatherings. In the afternoons, when the sun goes down, we allow her to play outside, and we also engage in various activities with her at home.

 

There are times when it’s challenging to keep her indoors, but I understand her perspective—she’s a child, after all, and not everything will make sense to her. It can be confusing for her when she’s sometimes allowed outside and other times not. This reality makes me feel sad because I wish she could have the same childhood experiences I had growing up.

 

Every child deserves to enjoy their childhood fully. We do our best to create joyful moments for Ava and to help her feel loved, included, and happy in her own way. Her journey is unique, but her happiness and well-being are always our top priorities.**

 

 

 

 

 

 

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