This site is dedicated to providing links to products for sensitive skin and children with special needs, living with a genetic disorder or even having a child with special needs can be stressful at times, especially when trying to find the right product for our childrens skin. Here i give my recommended products i have personaly tested and products that have had great reviews.

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Uniquely Human  

Uniquely Human is a “brilliant” (Steve Silberman, author of NeuroTribes) approach to autism in the modern age that provides “common sense [and] practical advice” (Temple Grandin, author of The Autistic Brain) drawn from Dr. Prizant’s four-decade career. It conveys a deep respect for people with autism and their own unique qualities. Filled with humanity and wisdom, Uniquely Human “should reassure parents and caregivers of kids with autism and any other disability that their kids are not broken, but, indeed, special (Booklist, starred review).

Sunscreen for sensitive skin

Fun time activies for special needs children

Welcome to Ava's Blog.

Ava was born with a rare genetic disorder, Xeroderma pigmentosum (XP).

A condition that prevents her skin healing from sun damage. 

In this blog I share my stories of my daughter and I, and what

it's like living with XP

 

 

                                                                       

Unlike most children, Ava can't spend time in the sun, while she has her days outside, it is still very limited, even with sunscreen. She mainly goes out when going to hospital or when we can afford it, she goes to a shopping mall or indoor kids area where she can interact with other children.  Xeroderma pigmentosum (XP) is a very rare genetic disorder and there is currently no cure, she also has microcephaly (small head size) she has dwarfism and a learning disability. Every day life can be challenging, but we stay motivated and find ways to progress. I just want to share our life stories, so more people are made aware of rare genetic skin disorders and to let you know your not alone.

 

Ava can't be defined by her skin or mental disorder, her personality and heart is more special than words can describe, making her 1 in a million... And i wouldn't want to change her in any way. Even tho Ava has mental delays and is non-verbal Ava is very smart, when she is around other children she always tries to act like a parent and sometimes even shows children how to do things in a safer way.

 

It's also so hard finding the right moisturizing lotions and sunscreens for childrens delicate skins, even the right hair products can be a daunting task to find, especially for curly hair, so many expensive products i have tried but just never seem to work. I will also share any recommendations for what I or others have found useful that actually work. 

 

First question is what are freckles?

 

Freckles are small, flat, pigmented spots that typically appear on the skin due to increased melanin production. They tend to run in families, and their visibility can be influenced by sun exposure, as UV rays stimulate melanin production. Freckles commonly appear on sun-exposed areas such as the face, shoulders, and arms, and they vary in size, number, and intensity from person to person. While many people view freckles as a charming or unique feature, others may feel self-conscious about them. Importantly, freckles themselves are harmless; however, any changes in their appearance should be monitored, as they can sometimes indicate skin health issues.

 

 

 

Now let's talk about Ava's freckles

 

We often receive questions about whether Ava was born with freckles. The answer is no. I vividly remember when she was a baby; we had to rush her to the hospital because her face was red and swollen. She was crying loudly, indicating the level of pain she was in. At that time, we had no idea what was wrong, and even the doctors were unable to determine the cause.

Years later, we pieced together that she was experiencing a reaction to the sun. Around 18 months old, she began developing freckles. Initially, we did not pay much attention to this, as freckles are common among some individuals, particularly those with red hair. Consequently, we did not consider her freckles to be a serious concern at first, and they were fewer in number than they are now.

After her diagnosis, we took steps to protect her from sun exposure. However, due to her skin condition, no matter how diligently we applied sun protection, she continued to develop more freckles. Even brief exposure to sunlight causes visible effects. While freckles are permanent, we, as her parents, We use organic products in an effort to lighten existing freckles and prevent the formation of new ones.

Our concern is not with her freckles per se, but because her freckles are atypical, and her skin requires careful management.

 

 

Below, I will include photographs of her as a young child and a recent image.

 

 

 

Some may consider her freckles to be insignificant; however, the key point is that if Ava did not have her skin condition, her freckles would be regarded as normal. It is quite uncommon to see a young child with freckles. Despite her freckles, Ava is absolutely beautiful, and her unique features contribute to her individuality.

 

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