This site is dedicated to providing links to products for sensitive skin and children with special needs, living with a genetic disorder or even having a child with special needs can be stressful at times, especially when trying to find the right product for our childrens skin. Here i give my recommended products i have personaly tested and products that have had great reviews.

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Uniquely Human  

Sunscreen for sensitive skin

Fun time activies for special needs children

Welcome to Ava's Blog.

Ava was born with a rare genetic disorder, Xeroderma pigmentosum (XP).

A condition that prevents her skin healing from sun damage. 

In this blog I share my stories of my daughter and I, and what

it's like living with XP

 

 

                                                                       

Unlike most children, Ava can't spend time in the sun, while she has her days outside, it is still very limited, even with sunscreen. She mainly goes out when going to hospital or when we can afford it, she goes to a shopping mall or indoor kids area where she can interact with other children.  Xeroderma pigmentosum (XP) is a very rare genetic disorder and there is currently no cure, she also has microcephaly (small head size) she has dwarfism and a learning disability. Every day life can be challenging, but we stay motivated and find ways to progress. I just want to share our life stories, so more people are made aware of rare genetic skin disorders and to let you know your not alone.

 

Ava can't be defined by her skin or mental disorder, her personality and heart is more special than words can describe, making her 1 in a million... And i wouldn't want to change her in any way. Even tho Ava has mental delays and is non-verbal Ava is very smart, when she is around other children she always tries to act like a parent and sometimes even shows children how to do things in a safer way.

 

It's also so hard finding the right moisturizing lotions and sunscreens for childrens delicate skins, even the right hair products can be a daunting task to find, especially for curly hair, so many expensive products i have tried but just never seem to work. I will also share any recommendations for what I or others have found useful that actually work. 

 

Does Ava Get to Have Fun
2025-05-16 07:11   Many people might wonder if Ava has opportunities for fun and play. Occasionally, we take her to places where she can enjoy herself and interact with other children. When she was a baby, we took he...
Skin Protection Measures for Ava
2025-05-15 10:48 Ava is not permitted to be in the sun at all times; however, there are occasions when we have no choice, such as hospital appointments. During these outings, I ensure that I apply sunscreen all over h...
Not reaching Milestones
2024-11-16 13:41 As parents, many of us never anticipate that our child may have special needs. For me, that was definitely the case. I never imagined I would find myself in such a situation, and honestly, I think tha...
Special Moments
2020-04-05 13:36 When Ava turned one, that was a wonderful time, and I was super excited. She had a small party and had fun. She was not walking yet nor talking; I still thought maybe she was just delaying reaching he...

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