This site is dedicated to providing links to products for sensitive skin and children with special needs, living with a genetic disorder or even having a child with special needs can be stressful at times, especially when trying to find the right product for our childrens skin. Here i give my recommended products i have personaly tested and products that have had great reviews.

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Uniquely Human  

Sunscreen for sensitive skin

Fun time activies for special needs children

Welcome to Ava's Blog.

Ava was born with a rare genetic disorder, Xeroderma pigmentosum (XP).

A condition that prevents her skin healing from sun damage. 

In this blog I share my stories of my daughter and I, and what

it's like living with XP

 

 

                                                                       

Unlike most children, Ava can't spend time in the sun, while she has her days outside, it is still very limited, even with sunscreen. She mainly goes out when going to hospital or when we can afford it, she goes to a shopping mall or indoor kids area where she can interact with other children.  Xeroderma pigmentosum (XP) is a very rare genetic disorder and there is currently no cure, she also has microcephaly (small head size) she has dwarfism and a learning disability. Every day life can be challenging, but we stay motivated and find ways to progress. I just want to share our life stories, so more people are made aware of rare genetic skin disorders and to let you know your not alone.

 

Ava can't be defined by her skin or mental disorder, her personality and heart is more special than words can describe, making her 1 in a million... And i wouldn't want to change her in any way. Even tho Ava has mental delays and is non-verbal Ava is very smart, when she is around other children she always tries to act like a parent and sometimes even shows children how to do things in a safer way.

 

It's also so hard finding the right moisturizing lotions and sunscreens for childrens delicate skins, even the right hair products can be a daunting task to find, especially for curly hair, so many expensive products i have tried but just never seem to work. I will also share any recommendations for what I or others have found useful that actually work. 

 

Education Journey
2025-06-09 17:18   1. Reflections on Ava’s Educational Journey   Initially, I envisioned or considered the possibility of taking Ava to a traditional school, where she could learn alongside other children and experi...
Reflection on the Parenting Journey
2025-06-08 11:24 My experience with parenting so far has been positive, but I acknowledge that it is not without it's challenges. Parenthood involves many ups and downs, including frequent tantrums and concerns about ...
Freckles
2025-05-26 11:14 First question is what are freckles?   Freckles are small, flat, pigmented spots that typically appear on the skin due to increased melanin production. They tend to run in families, and their visibi...
Celebrating Ava's Unique Journey
2025-05-23 12:52 Ava is non-verbal and communicates through gestures, body language, and hand movements. She works hard to form an understanding of words and to express herself in her own special way. There are moment...

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